Monday, December 6, 2010
I am going to start this post and see how far I get. I probably should write this some other time, because I am already crying, but here goes. Do you know what Sensory Processing Disorder is? No? Neither did I until a few months ago.
One of my boys, who I will call s.h (superhero), is dealing with spd. A mild form, so mild that the occupational therapist doesn't need to see him again. But this mild spd is still rocking our world.
Last week, s.h. wore clothing for 2 hours from Monday through Thursday. Two hours. As the temperature dropped, as he took meds for bronchitis, my beautiful boy couldn't handle the feeling of clothing other than his underwear. They tickle. They have tickled since he was 32 months old. It has been a long journey.
Tags need to be cut out of shirts. His snow boots are the only shoes he has worn for months. He will wear only one style of socks, of which we have 4 pairs. He now refuses to wear a coat, refuses to layer clothing, is unable to handle the feel, the tickle...
"Mom, will I go to school at Christmas?"
no, not yet.
"But mom, will I be grown up at Christmas?"
well, you will be older than you are today.
"But mom! Will the tickle go away at Christmas? Will it go away????"
Why am I sharing this with you? Many reasons. This blog is about my life, and this has consumed my life and changed what is normal.
I am sharing this so that if you have ever judged a parent for their parenting decisions, as I have, that you will recognize that there may be more going on here than you can see. You may not see a parent crying inside because she doesn't know how to help her son. How to give her son the wings he needs to fly. Doesn't know if her son is ever going to be able to go to school...or play in the snow...So many layers...so many ups and downs...
...but there is a child asleep in his bed right now that is so loved, so delighted in, such a blessing...and this is simply a part of our journey with him.......